Key references: Life-stage approach to care of people with developmental disability

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  • Clute MA. Bereavement interventions for adults with intellectual disabilities: what works? Omega (Westport) 2010;61(2):163–77. https://www.ncbi.nlm.nih.gov/pubmed/20712142
  • Douglas J, Bigby C. Development of an evidence-based practice framework to guide decision making support for people with cognitive impairment due to acquired brain injury or intellectual disability. Disabil Rehabil 2018:1–8. https://www.ncbi.nlm.nih.gov/pubmed/30451022
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  • Fairthorne J, Bourke J, O’Donnell M, Wong K, de Klerk N, Llewellyn G, et al. Pregnancy and birth outcomes of mothers with intellectual disability and their infants: Advocacy needed to improve well-being. Disabil Health J 2020;13(2):100871. https://www.ncbi.nlm.nih.gov/pubmed/31806497
  • Ganzel BL. Trauma-informed hospice and palliative care. Gerontologist 2018;58(3):409–19. https://www.ncbi.nlm.nih.gov/pubmed/27927732
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  • National Institute for Health and Care Excellence (NICE). Care and support of people growing older with learning disabilities [NG96]. London: NICE; 2018. https://www.nice.org.uk/guidance/ng96
  • Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG). Prenatal screening for chromosomal and genetic conditions. Melbourne: RANZCOG; Accessed Oct 2019. https://ranzcog.edu.au/womens-health/patient-information-resources/prenatal-screening-for-chromosomal-and-genetic-con
  • Sullivan WF, Diepstra H, Heng J, Ally S, Bradley E, Casson I, et al. Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Can Fam Physician 2018;64(4):254–79. https://www.ncbi.nlm.nih.gov/pubmed/29650602
  • Tymchuk AJ, Llewellyn G, Feldman M. Parenting by persons with intellectual disabilities: a timely international perspective. J Intellect Dev Disabil 1999;24(1):3–6.
  • Young H. Overcoming barriers to grief: supporting bereaved people with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 2017;63(3):131–7. https://doi.org/10.1080/20473869.2016.1158511