Role of the paediatrician and the specialist paediatric palliative care service

A child’s general paediatrician (or paediatric subspecialist) is usually the lead clinician in the care of children with life-limiting illnesses. The paediatrician has often known the child and their family since diagnosis and has a good understanding of the child’s underlying condition. Paediatricians usually wish to remain closely involved in the care of their patients, even as they transition to palliative care.

Specialist paediatric palliative care services generally act in a consultative manner, to support the paediatrician and other members of the healthcare team. They can provide assistance in a range of areas including symptom management, practical supports (eg arranging equipment or respite), emotional and spiritual support, and support when making difficult clinical decisions that impact on a child’s quality of life.

Most children’s hospitals in Australia have multidisciplinary specialist paediatric palliative care services. These services provide consultation to inpatients, and outreach to children being cared for at home, or in other hospitals and services.